Today I have decided to finally write to you. I write because I am hurt once again by your continued ignorance and judgments levied against me. Yes, I know you mean well and think you are looking out for my best interest. But your finger pointing only results in at least three fingers pointed right back at yourself. So today I'm going to show you what you look like from my perspective.
General Background....
I have four children and a loving husband. All of whom were born and diagnosed with a bone disorder causing them to fracture easily. An additional side effect is the possible development of scoliosis. All four kids did develop some degree of it, my younger two far worse. Both need medical intervention to some degree. One needs surgery by March or April of 2015. The other now wears a brace to hopefully prevent her from ever getting to the point of needing surgery. That's where we are right now. An emotionally difficult stage somehow wishing and barely hoping that God will intervene THIS time to correct their backs without the need of surgery.The History....
Due to this disorder, the lack of understanding, and educated doctors locally we had to seek out help. We needed medical specialists who have been studying this connective tissue disorder and treating it successfully. We were blessed enough to find world renowned doctors in Montreal. And I literally mean world renowned! They are the top specialists in the field of research and treatment for connective tissue disorders who actually travel the world. What a blessing to find such knowledgable physicians and researchers, who are also very gifted at treating children. We have also never paid for any of the travel, hotel stays, or our food while there. This includes airfare! Never have we had to pay out of pocket for one trip. Nor have we ever had to pay for orthopaedic or bracing appliances. That's been probably thousands of dollars alone!
So for 17 years now we have been attending appointments at least twice a year in Montreal, and St. Louis, Mo (during a four year stint in the States). All four children have improved in their bone density and thus reduced the number of fractures due to the treatments they receive and the instruction we have all gotten regarding everyday living. Like what to avoid, what to do, what to eat, and what not eat. The quality of their lives and our families life has only improved because of these wonderful specialist.The Shame.....
My only insinuated shame comes from where I take my children to get this free and amazing medical care. We go to The Shriners Hospital for Children.
Yes, you are correct, the Shriners have to be Masons before they can be Shriners. And if you are a christian who believes in the power of healing you have no doubt heard that to be connected to a Mason is also to be subject to the vows they take of secrecy when they join.
So out of the goodness of peoples hearts I have had books pushed in my face about the Masons. I have been told, bluntly, that we need to stop going to the Shriners hospital and renounce the curse we have taken on our family for going.
It's as if Christ's death did nothing to protect us from this present evil at all!
The Result.....
I had to come to a place where I could attend the hospitals for the great care my children still needed but have a blanket statement to give you well meaning busybodies. This is it..."The wealth of the wicked is stored up for the just". Being a christian, saved by His Grace I am now a new creation. I am now a Saint. And as such I have the right and privilege to take and use what was meant, or spoken, in evil and receive it as a part of my inheritance and blessing. I was at peace with this until one of my daughters heard someone talking about the Shriners and she came to me wondering why there was any negative associated with going there, as she has done since birth. You were no longer dealing with me, you touched the innocent heart of my child! Mother bear has just been woken!
In Conclusion......
So, let me say this, well meaning Brother and Sister in Christ. Your well meaning stinks of self righteous judgement. Not once has any who criticized me for taking my children to the Shriners Hospitals and told me to break ties with the organization ever offered an alternative.
Not one individual, church or ministry, has ever offered to stand with us and pray daily, or hourly, for as long as it was necessary to see full healing and restoration in any one of my children. Nor has any of those mentioned ever offered to pay for our flights, our food or our hotels to visit these very same doctors in the Montreal Childrens Hospital, where they also practice.
If I am so in the wrong for taking my children to get the medical care they required because I am not walking in faith, or taking on a curse under a particular philanthropical association due to their own lack of wisdom by making a vow against God (have grace, they do not know what they are doing), then how much more are you, dear brother and sister in the wrong for judging me for doing my best for the care and health of my children when the very brothers and sisters I need to stand with me and fight abandon me?!
The Encouragement.....
Let me not be accused of lashing out hatefully at you for your own lack of wisdom brothers and sisters. I want to take this last moment to encourage you. Please, lay your hands on the sick, cast out demons so that they all recover. Seek and chase after the signs and wonders Jesus told us we will also do in Mark 16:15-18. Let this only be a reminder and even a wake up call to you Church, that sometimes (probably more than we would like) you will need to make the commitment to walk that difficult road WITH the sick, the lame and the demon possessed in order for there to be full joy for all when the restoration does come. What is there to loose in the perseverance in such matters? What is there to gain should be the real question.
For, as it is in my case, I have very nearly left the fold over the years of your judgments. Angered, beaten down and discouraged by always seeming to not be strong enough in my faith, or good enough for your help. How much different could our lives have been if only one person made the commitment to walk with us in this difficult journey of multiple health issues, and just prayed for even one of my children every time they saw them, or thought of them? What if we were encouraged instead of repeatedly discouraged in doing the best for our children that we knew to do?
So, learn from us. We were worthy of the effort, but no one seemed up to the task of taking on a long term commitment. Oh, the rewards that could have been gained by ALL of us! So instead keep in mind, the next person you see most probably needs the same kind of love, encouragement and commitment that we have been denied. Unless maybe, I'm really just expecting too much....
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